So with the help from the Washington University School of Medicine outside of St. Louis, Missouri, J.T. and his sister are trying to help raise awareness and funds to find a cure for this disease. From what J.T. said, "they are really close to finding something, but they need help (funding)."
If you are interested in learning more about Wolfram Syndrome, and helping J.T. and his sister fight this disease, please visit their website at http://snowmanfund.com/default.aspx.